{"id":15435,"date":"2019-02-15T18:42:25","date_gmt":"2019-02-15T18:42:25","guid":{"rendered":"http:\/\/katolicka-gimnazija.hr\/?p=15435"},"modified":"2019-03-22T22:25:16","modified_gmt":"2019-03-22T22:25:16","slug":"rijetki-inspiriraju-ostavi-trag","status":"publish","type":"post","link":"https:\/\/katolicka-gimnazija.hr\/index.php\/2019\/02\/15\/rijetki-inspiriraju-ostavi-trag\/","title":{"rendered":"Rijetki inspiriraju. Ostavi trag!"},"content":{"rendered":"<p>U petak 15. velja\u010de Hrvatski savez za rijetke bolesti u sklopu nacionalne kampanje predstavio je na\u0161im u\u010denicima u Dvorani sv. Terezije Avilske projekt <em>Rijetki inspiriraju. Ostavi trag! <\/em>s ciljem informiranja prvenstveno njih o rijetkim bolestima. Jedan od ciljeva ovogodi\u0161nje kampanje jest i poziv svim oboljelima diljem Hrvatske da se jave Hrvatskom savezu za rijetke bolesti jer \u0107e se idu\u0107ih godinu dana provoditi veliko istra\u017eivanje o oboljelima od rijetkih bolesti, a rezultati istra\u017eivanja utjecat \u0107e i na smjer kontrole i lije\u010denja rijetkih bolesti u Hrvatskoj.<\/p>\n<p><strong><a href=\"http:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-15439 size-medium\" src=\"http:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-300x200.jpg\" alt=\"51920748_2354544247897965_3986839435877548032_n\" width=\"300\" height=\"200\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\u201e<\/strong><strong>Tijekom cijele velja\u010de putem medija i dru\u0161tvenih mre\u017ea pozivat \u0107emo sve da podijele svoje pri\u010de koje bi mogle inspirirati druge. Na prepreke u svakodnevnom \u017eivotu ne nailaze samo oboljeli od rijetkih bolesti. Na\u010din na koji se suo\u010davamo s preprekama inspiracija je za druge. \u017delimo svima pokazati da su prepreke ujedno i izazovi. Pozitivne pri\u010de motiviraju pojedince, a to je ono \u0161to nam je potrebno. Rijetki \u0107e inspirirati rijetke<\/strong><strong>.\u201c\u00a0poru\u010duju iz Saveza.<\/strong><\/p>\n<p>Naglasak ovogodi\u0161nje kampanje stavljen je na educiranje u\u010denika, budu\u0107ih djelatnika u sustavima zdravstvene i socijalne skrbi, koji \u0107e se u svom poslu susretati s rijetkim bolestima. Na akcije u sklopu kampanje pozvani su svi gra\u0111ani koji \u017eele znati vi\u0161e o rijetkim bolestima i dati podr\u0161ku svojim sugra\u0111anima<\/p>\n<p>U svijetu postoji\u00a0<strong>od 6.000 do 7.000 poznatih rijetkih bolesti<\/strong>\u00a0i kada se promatra njihov zajedni\u010dki utjecaj, <a href=\"http:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-15443 size-medium\" src=\"http:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-300x200.jpg\" alt=\"52021596_2354544767897913_4066841246239293440_n\" width=\"300\" height=\"200\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>poga\u0111aju oko 20 milijuna ljudi u Europi. \u00a0U Republici Hrvatskoj rijetkim bolestima smatraju se one koje se javljaju kod\u00a0<strong>manje od pet pojedinaca na 10.000 stanovnika<\/strong>\u00a0te se procjenjuje da ima oko 250.000 oboljelih. Prvi simptomi rijetkih bolesti poga\u0111aju oboljele u razli\u010ditoj \u017eivotnoj dobi. Kod mnogih se javljaju od ro\u0111enja i u djetinjstvu, no postoje i one specifi\u010dne za odraslu dob. Tre\u0107a mogu\u0107nost je da se prvi simptomi pojave u djetinjstvu, ali se bolest pogor\u0161a tek u kasnijoj dobi. Osim toga, simptomi koji su sli\u010dni simptomima nekih \u010destih i poznatih bolesti, mogu prikriti \u010dinjenicu da se ipak radi o rijetkoj bolesti. Posljedica toga je da oboljeli jako dugo \u010dekaju pravu dijagnozu i lije\u010denje te \u010desto primaju neadekvatnu terapiju.<\/p>\n<p>Video spot o ovoj plemenitoj kampanji mo\u017eete pogledati na sljede\u0107oj poveznici:<\/p>\n<p><a href=\"yt: https:\/\/www.youtube.com\/watch?v=L-u9d5f72qg\">Rijetki inspiriraju. Ostavi trag!<\/a><\/p>\n<div id='gallery-1' class='gallery galleryid-15435 gallery-columns-3 gallery-size-medium'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52038606_2354545154564541_1965572051934642176_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52038606_2354545154564541_1965572051934642176_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52038606_2354545154564541_1965572051934642176_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52038606_2354545154564541_1965572051934642176_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52038606_2354545154564541_1965572051934642176_n-768x512.jpg 768w, 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class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52406574_2354544894564567_4796335591719436288_n.jpg 960w\" sizes=\"auto, 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https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52258598_2354545497897840_7194778465202077696_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52258598_2354545497897840_7194778465202077696_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52258598_2354545497897840_7194778465202077696_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/52021596_2354544767897913_4066841246239293440_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51856648_2354544527897937_7434313580188532736_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51977448_2354545424564514_7262040208562978816_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"200\" src=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-300x200.jpg\" class=\"attachment-medium size-medium\" alt=\"\" srcset=\"https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-300x200.jpg 300w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-400x267.jpg 400w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n-768x512.jpg 768w, https:\/\/katolicka-gimnazija.hr\/wp-content\/uploads\/2019\/02\/51920748_2354544247897965_3986839435877548032_n.jpg 960w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a>\n\t\t\t<\/div><\/figure>\n\t\t<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>U petak 15. velja\u010de Hrvatski savez za rijetke bolesti u sklopu nacionalne kampanje predstavio je na\u0161im u\u010denicima u Dvorani sv. Terezije Avilske projekt Rijetki inspiriraju. Ostavi trag! s ciljem informiranja prvenstveno njih o rijetkim bolestima. Jedan od ciljeva ovogodi\u0161nje kampanje jest i poziv svim oboljelima diljem Hrvatske da se jave Hrvatskom savezu za rijetke bolesti [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":15446,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,208,2],"tags":[],"class_list":["post-15435","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-fotogalerije","category-humanitarno","category-vijesti"],"_links":{"self":[{"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/posts\/15435","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/comments?post=15435"}],"version-history":[{"count":1,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/posts\/15435\/revisions"}],"predecessor-version":[{"id":15450,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/posts\/15435\/revisions\/15450"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/media\/15446"}],"wp:attachment":[{"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/media?parent=15435"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/categories?post=15435"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/katolicka-gimnazija.hr\/index.php\/wp-json\/wp\/v2\/tags?post=15435"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}